We aim to deepen understanding of spina bifida and hydrocephalus to provide the best possible outcome for our members.  

We believe that all health professionals should recognise the potential for good quality of life.  Shine promotes the importance of regular health checks to identify problems and refer for specialist treatment and support. We educate professionals on the management of the complex physical, cognitive and mental health issues that can arise for our members. 

Shine offers specialist support to those working in education, including advice and information on assessment strategies and learning environment, SEN support planning, and spotting medical emergencies. We encourage education professionals to assess the unique effects of individual children and young people’s conditions to help them achieve their goals.  

Shine is almost entirely funded by the generosity of the general public. Our balloon races make a significant contribution to our funds every year. By sponsoring a balloon you would be helping us to continue to provide the vital services our members urgently need. 

Promoting education and understanding is vital if our members are to achieve a good quality of life and reach their goals. Your generous donation will support our work in reaching out to healthcare and education professionals so that they are best equipped to help our members