Winners in: 2nd September Professional Support Race

Upcoming races - get involved now!

Our aim is to engage, empower and enable all our members to have better lives by helping them to share with others their personal experiences of life with spina bifida.  

14th October Spina Bifida Awareness Week.

Anencephaly is the most severe of a group of conditions known as Neural Tube Defects (NTDs). It happens in about 1 in 2,000 pregnancies in the UK and occurs during the first 28 days of pregnancy when an unborn baby’s brain does not form properly in the womb. Diagnosed by ultrasound at the dating scan, anencephaly is sadly always fatal.

Anencephaly Awareness & Support November 5th 2024

Shine’s Little Stars programme supports children aged 0-12 years old with spina bifida and/or hydrocephalus, as well as their parents and carers.

Little Stars Virtual Balloon Race 6thJanuary 2025

Records and Statistics

Site Record: Highest Altitude Achieved

50000m

By SMC Flooring

Site Record: Furthest Distance Travelled

5420.52km

By Inspiring Words

Site Record: Total Balloons Launched

757222