Current Races

Shine provides specialist advice and information to professionals working in healthcare and education. We aim to deepen understanding of spina bifida and hydrocephalus to provide the best possible outcome for our members. 

Our aim is to engage, empower and enable all our members to have better lives by helping them to share with others their personal experiences of life with spina bifida.  

Anencephaly is the most severe of a group of conditions known as Neural Tube Defects (NTDs). It happens in about 1 in 2,000 pregnancies in the UK and occurs during the first 28 days of pregnancy when an unborn baby’s brain does not form properly in the womb. Diagnosed by ultrasound at the dating scan, anencephaly is sadly always fatal.