Current Races

The Parents and carers of babies, children and adults with spina bifida and/or hydrocephalus and associated conditions hold a vital role in the lives of our members. They are often responsible for coordinating support from agencies including social care, the GP, and other care workers and professionals. 

The teenage years are vitally important for those with spina bifida and hydrocephalus. Shine’s work with teens focuses on promoting understanding that looking after themselves can help to prevent life-threatening health complications as they get older.