Current Races

Shine’s aim is to engage, empower and enable all our members to have better lives by helping them to share with others their personal experiences of life with spina bifida

Anencephaly is the most severe of a group of conditions known as Neural Tube Defects (NTDs). It happens in about 1 in 2,000 pregnancies in the UK and occurs during the first 28 days of pregnancy. Anencephaly sadley is always fatal. 

Parents and carers of babies, children and adults with spina bifida and/or hydrocephalus and associated conditions hold a vital role in the lives of our members.