Spina bifida (literally, ‘split spine’) is often diagnosed at the 20-week antenatal scan. Many of our members use a wheelchair full time, experience bladder and bowel difficulties which require catheterisation and medication and have loss of skin sensation. Spina bifida also affects brain development, impacting learning and behaviour. Struggles with memory, attention, processing information and planning can make daily life challenging.  

Shine’s specialist advisors provide support on a range of issues including support and development, early intervention, health, education and benefits. This enables members to take informed decisions on their care and gives them the confidence to tell their stories. 

Shine is almost entirely funded by the generosity of the general public. Our balloon races make a significant contribution to our funds every year. By sponsoring a balloon you would be helping us to continue to provide the vital services our members urgently need. 

Your generous donation would help us empower all our members to have better lives by sharing their experiences. It would enable us to continue providing specialist advice and support to members, parents, families and health professionals – pre-birth and beyond. 

If you have an idea about how you might like to fundraise for us, please get in touch. Or you can find inspiration on our website at www.shinecharity.org.uk.